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Showing posts with label Medical. Show all posts
Showing posts with label Medical. Show all posts

Thursday, November 20, 2025

Early Appointment...

 

Not happy I'm up early for a medical appointment.  Earlier appointments tend to mean shorter wait times.  So, I opt for them.  It doesn't help I didn't sleep well.  Nor that it's dark & trying to storm.   A check up is my to-do for this morning.  

I hate the 'Ber months.  We're back to dismal gray.  It could stay like that for a bit.  Winter sucks & we aren't even there yet.

That's it for now, take care.

Cya...

Wednesday, November 19, 2025

Still

 

The wind is making breathing a bit of an issue.  It's blowing stuff about & not letting anything settle.   This week will probably be the end of the unseasonably warm reprieve.  Then things are supposed to be normal for November.  There could be another overnight freeze next week.  I hope not.  We're not even into Winter yet.

There are some errands & things today but not much.  Tomorrow, I'll see my medical provider.  If things go well smoothly, this should be an in & out kind of thing.

That's about it for now, take care.

Cya...

Monday, May 19, 2025

Early Appointment....

 


I don't have time for much this morning.  I have a appointment with my medical provider.  It should be routine.  Wish there'd been less trains last night.  At least some that weren't so loud.  Normally, I sleep through them, but these really cranked up the noise.

That's it for now, take care.

Cya....

Friday, November 8, 2024

Better Research...

 

Medical research has historically had an issue with studying broad enough populations.  In the beginning, it was often either White men or people in situations where they were unaware or without freedom to choose.  HIV research may not have been done by force or duplicity, but it has been historically just as limited.  

Early on, most the studies were only on White males.  Then slowly they began adding people of color.   Then they added trans-women.  But seldom were woman or girls included in the research.  If they were, it was generally much later in development.

This article is about Gilead's attempt to design inclusive studies.   In sub-Saharan Africa, woman are more greatly impacted by HIV.  Any research there should focus foremost on them.  The piece goes into more detail about how they have used this during their research for their long acting injectable.  

Give this a read.  Hope everyone is doing well.  We're trying to do as well as we can.  

Take care.

Cya...

Wednesday, January 11, 2023

Irritated...

 

There's lots to be irritated with like the weather, allergies or seasons in general.  This morning however, I'm irritated there was another paywall concerning info about a newly approved HIV med.  I've posted on it before, but this info could've been beneficial.  

Lenacapavir is the 1st in class capsid inhibitor.   This med is supposed to be able to inhibit many functions of the virus.  That article is important.  Maybe soon, someone else will repost the info & not be behind a paywall.

Paywalls on medical information are prohibitive to people getting information that might better their health.  Yes, sites need cash to function.  Still, there's got to be a better way.

That's all for now, take care.

Cya...

Saturday, February 12, 2022

Well, OK Then, Cold...

 

It's not as bright this morning & the weekend is going to be cold, overnights in the low 20s.  Looks like next weekend is going to do the same.  I know it's February, but I'm sick of the cold.  Today would've been my mother's birthday.  She was born on the same day as Lincoln.  When I was little, both Lincoln & Washington's birthdays were on the Calendar, now there's just President's Day.  

There are constantly articles about disparities between the medical situations of the mainstream population & other groups, especially those based on ethnicity, race, religion, ideology or socioeconomic class.  For some poor people, medical attention may be difficult to access or afford.  For the rest, it's something else.

Most often these articles refer to Black people.  I'm sure they have their reasons for avoiding conversations or treatment for HIV, COVID & other things.  The point is, it doesn't matter.  Without education, prevention, conversation & treatment these people are going to continue to be disproportionately affected by these illnesses.  There's nothing anyone outside  this community can do about it.  At this point, this is their fight.

That's all for no, take care.

Cya...


Sunday, January 2, 2022

Moving Up...

 

When I started my HIV treatment with Tulsa OSU Healthcare,  I had several people revolve in & out.  Some were staff that changed positions, many were interns/residents.  But in the beginning, it was  Doctors Damon Baker & Johnny Stephens.  Baker  was the primary push behind HIV at OSU & he was there when their telemedicine started.  I saw those 2 every 3 - 6 months.  Stephens was the pharmacist.  In fact,  he's the only person I've never doubted when it came to HIV & the regimens used to treat it.  His knowledge & the way he carried himself, made this much easier.  Most other people, including doctors, are idiots when it comes to HIV & the various HIV medications.

Dr Baker moved on several years back.  He's now a big player in OSU medical school.  He's been a major  face in the Tulsa area fight against COVID.  I'm thankful for what he's done for me, but I'd rather still have him as my doctor.  I'm greedy that way.

This article is about Dr Stephens.  I haven't  seen him in years, but he's the reason my treatment is on the path it is now.  Again, happy for all he's accomplished, still wish he was my pharmacist.  Good people in medicine are hard to find.

That's all for now, take care.

Cya...

Friday, November 22, 2019

And Again...


According to this post, due to a sterilization error more than 1,000 patients in an Indiana hospital may have exposed to HIV, hepatitis & more.  How many times does this have to happen?

My crown was finished yesterday.  It still feels weird.  It will for a while.  It's been raining since last night.  It may throughout the day.  We've had nearly an inch.   It's supposed to cool back down again.  Oh well, it is the end of November.

Take care.

Cya..

Monday, May 27, 2019

Consent...


This article is about a bill in the New York State Senate Health Committee.  If passed, it would allow doctors to test anyone for HIV without consent.  There was some reference to signage in  medical centers, but it was unclear & would be all the warning the patient was given.  Entrance would be taken as consent.  That wouldn't fly for sex, why should it for medical procedures?

I absolutely support testing.  But, I also fully support consent.  Who decides which patients to test?  Who's going to pay for this test?  It shouldn't be the patient, if they didn't request it.   This approach may have good intentions, but it's very misguided.  It could set a precedence for very dangerous & invasive things.

Your consent should always be required for anything involving your person.  Anything else, no matter the intent, is a violation.

Cya...

Sunday, May 19, 2019

Outage, Stress & Yick...


May has not been easy month for me, just a continuation of this messed up Spring's drudgery.  It's only added to my SAD.  I'm trying to keep myself going, but this season has been rough.  

I went to a specialist appointment, basically for them to call for a redo, whenever they get themselves around to it.  I have no more info on the stroke situation.  Guess, I should've known better than better than to trust a local MRI.  

Then I get sick as I'm getting off the statin.  The weather sucks & my body is really stiff & achy.  Sometimes painfully so.  

Yesterday, there was a severe storm in the area.  Because Oklahoma can't just rain, it has be huge gusting, lightning filled, hail dumping thunderstorms or tornadoes.   This 1 knocked out the power for hours.  I didn't need the stress.  I'm  exhausted.

I guess my rant's over for now.  I'm tired & cranky.  I really don't see any end to this crap soon.  I hope everyone else is doing better.  Take care.

Cya...

Monday, June 11, 2018

3 Things...


1st, this article talks about how closeted men are more apt to spread HIV than others.   I've seen this a lot articles lately.  These men often consider themselves straight but still engage in M/M sex.   They aren't open & rarely engage in sex with openly gay men.  They have small pools of partners. If 1 gets infected, the whole group soon will.  Wow, the 1980s are alive & well.

2nd, this hits close to home.  Actually, I used to live in Tahlequah.  According to this piece, the Cherokee Nation hospital has had it's own incidence of medical negligence & HIV scare.  200 patients have been told they need to be tested due a nurse's "mistake".  How often am I going to have to write about these instances?

Finally, on a good note, the yard is getting colorful again.  The wild rose blooms are gone, but the tiger lilies & rose of sharon are blooming.  Soon the crepes will be.  That means the dragons & hummers will be here soon.  We've had a ton of wasp &  a horsefly.   I've seen quite a few lightning bugs at night.  Summer is here folks.

Cya...

Tuesday, May 8, 2018

Another Violation...


According to these 2 articles, 1 & 2,   A patient at University of Arkansas Medical School (UAMS) had their records exposed to the public by 4 people.  3 of which worked for UAMS.  The 1st violated privacy laws & revealed medial information about an HIV + patient to a coworker.   That coworker leaked the info to a party not affiliated with the hospital.  This person posted the records on Facebook.  A 3rd hospital employee knew of the matter, but said nothing to superiors.  All 3 were terminated & may be facing federal charges for violating the privacy laws associated with HIPAA.  Those papers you sign about your privacy everytime you go into the hospital or outpatient services.

I'm not sure why the active participants did this.  Could've been boredom or morbid curiosity.  Maybe they had a grudge against this patient.  All that matters is the person's privacy was violated in a way that can't be undone.  Whatever has happened, these criminals got what they were after & did their damage.   They should face severe punitive & monetary consequences.   Maybe losing $ & serving  time will teach them to mind their own business.

I doubt it, but they deserve it.   This patient has no reason to ever trust any medical establishment again.   This was a personal attack based on HIV stigma.  This was an assault on this person's life & well being.  There is no way these people didn't know what they did was illegal & unethical.  Another thing to worry about when seeking medical aid.  Just wonderful.

Cya...

Sunday, September 17, 2017

Adjacent...



This article isn't directly about HIV, but it's important.  It deals with the fall out of being poor, uninsured, under insured, etc.. in the U.S.   The author is a physician & he details how being poor is all but a death sentence in this article.    This quote will give you a taste.

In my 27 years at these two safety-net hospitals, not one of my patients received an organ or bone marrow transplant. Yet the organs that fed the transplant centers across the region came from the dying patients in these hospitals.  Our patients — the poorest of the poor — gave, but they never received.

The grip of HIV is most strongly felt among the poor & those areas most entrenched in poverty.  Poverty is prime factor in the spread of HIV, drug use & other socio-medical issues this country faces today.   Being poor isn't just a stigma, it's a nail in your coffin.

Cya...

Monday, December 5, 2016

Same Old @#^%...



I posted a few days back about another dentist possibly contaminating patients with HIV & HepC.  This time it was at a VA hospital.  I'm really sick of hearing about how doctors, dentists & staff are routinely being negligent or criminal enough to risk exposing their patients to communicable diseases like HIV, TB, hepatitis, etc.  Even if they are found guilty of the matter, most often little to nothing is done to them.  

What these professionals have done  can be compared to driving recklessly.   Even if no one was harmed in most states this can lead to fines, loss of license &/or imprisonment.   Why should a driving offense be treated less than this type of medical indifference to a patient's well being?  These medical professions should be fined, at least temporarily lose their licenses & possibly face prison sentences.  It's time for these to take their jobs & their patients health seriously.

Cya....

Wednesday, June 1, 2016

Contaminated...




This article discussed how over 2,000 people in India were infected with HIV due to blood transfusions.  If not for an activist's curiosity this may have never be known.  The activist wanted to know what  medical institutions in India were doing to ensure a safe blood supply.  What he wound was little to nothing was being done in most places.  Even though there is an abundance of awareness on the matter & the means to screen the blood.  

These numbers were just from around 17 months.  Imagine how many others have been impacted by this lack of oversight & screening since the epidemic started decades ago.  The numbers are genuinely frightening.

You might be safe in your little corner of the world.  But to assume  others are equally safe is false & dangerous.  These assumptions could risk your health & that of others.   Even a single individual who is unknowingly + could be the epicenter of a massive number of transmissions.  We don't see all the ripples of out intentional actions, how could we know those of our unintended doings?

Until the whole world is on the same page on how to handle HIV it will never be a war we can win.

Cya...

Tuesday, June 30, 2015

Yeah California...

There's big news in California today.  The governor signed into effect a law demanding vaccinations for kids.  The only exceptions will be medical.  Parents are going to scream they know what's best & their rights, blah, blah, blah.   Unless they're medical researchers or other medical staff, I doubt they know better  & screw their tights.  What rights?  The 1's where they don't vaccinate their kid & get to expose others to the virus?  That's BS.

Way to go California.  Promote vaccinations.  Measles shouldn't be something we think about in connection to your state.

Cya...

Thursday, June 18, 2015

Last Year...

Last year at this time my roomie was going through some serious medical issues & was up in Tulsa for treatment.  It was a trying event.  So we're heading out to mark the event in a more, positive manner.

Cya...

Thursday, February 19, 2015

New idea...

These articles A & B, are among many the last few days talking about a new approach to fighting HIV.   I've been avoiding them for a bit, until some a little less science-y  came along.  Some jargon laden pieces can sound very compelling when actually stating very little.

The point is that a novel approach to fighting HIV is being researched after a new "desinger" protein was developed.  This protein blocks the virus' ability to infiltrate cells & replicate.  Without this the virus will not be able to flourish.  

They're calling this an alternative to a vaccine. The particulars are still vague.  This is still newish.  Albeit, it sounds promising, it isn't a sure thing yet.  This could still be years away or eventually fail altogether.  Not meaning to be a downer, but realism is the best option here.  Even if this doesn't work, it could be the thing that opens the door to whatever will.

Cya...

Friday, July 25, 2014

News...

My roomie's doctor delivered good news this morning.  In the doctor's opinion, further treatment at this time would not be necessary.   That means no more doctors for a while for her.  It means no radiation for now.  It also means no more constant trips for medical issues.  At least, in the foreseeable future.

This is great news.  My roomie is still dealing with fallout from the treatments she's already undergone.  All of these post issues are normal according to the materials she's been researching.   Still, they can't be fun.

I'm thankful for this news.  I'm astounded the doctor got back this quickly.  Of course, there will be follow ups, but that's to be expected post surgery & as you age.  

This is starting out to be a good day.  I hope everyone has a great weekend. 

Cya...

Thursday, July 24, 2014

Maybe Good News...

My roomie's appointment seems to have gone well.  1st, if necessary, the place in Fort Smith can handle the high dose radiation procedures she needs.  That means no umpteen more trips to Tulsa.  Yippie! for that alone.

However, the doctor that saw my roomie didn't feel the treatments were actually necessary & may be an overcautious, preemptive course of action.  The doctor said she'd consult with some other experts & get back on the matter in a couple of weeks.  

Even if it does turn out the treatments are necessary, the doctor thought the number would be half of what my roomie was initially told.  This doctor would also want to to wait longer before starting the treatments.  That would most likely put us into September.  It might still be hot, but not as much as August.

The place was easy to access.  The people were nice.   It's relatively close.  There were a lot of perks.  

Hopefully, the doctor was right.   Maybe my roomie can skip this step.  That would be seriously good news.

Cya...