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Thursday, March 31, 2016

It's Happened...




A while back I blogged hospitals in the USA were finally going to start organ transplants involving HIV+ organs to + recipients.   It was announced John Hopkins would be the 1st to do so.   According to this article, doctors at John Hopkins announced yesterday they had performed the 1st + to + transplants.  This consisted of a liver & a kidney from a single donor to 2 recipients.  

This is astounding news.  It will mean + people will be more likely to receive transplants & these  newly available organs will improve organ availability for all in need.   This is a tremendous step.

Cya..

Wednesday, March 30, 2016

Screwed By State Repubs....



After a series of moves to chip away at any tax base in the state of Oklahoma, the inevitable has happened.   These ideas pushed through by the idiot state republicans running the show have nearly bankrupted our state.   While still giving department heads & commissioners huge raises & cutting away at taxes, they've decided the place to cut was public services.

They're cutting huge amounts out of education, medicaid & SSP.  SSP is the state version of disability.   They've decided to hold on to my check until July.  That's 3 months until I get the $. 3 months they can claim the interest on those funds.  Universities tried this with student's financial monies & were told it was illegal.  

They're  demanding a huge cut in the $ they'll pay out for medicaid.  That means any doctor, pharmacy, hospital or medical supplies provider could be facing a 25% cut.  I could lose my doctor if that happens.  If I do, I have no idea what I'll do.  

They tell people living with HIV to keep their stress down.  How the hell is that possible with asshats playing with what little resources you have?  My roomie & I have a plan for this for now, but what about the people who don't or can't.  

This may not be much $, but it's a water bill, a gas bill,  almost an electric bill.  That won't even count the ripples these cuts will make recipients lives.  Oklahoma republican politicians are horrible & don't give a damn about anyone other than themselves.  I wish them only the worse.

Cya...

Tuesday, March 29, 2016

1 A Year...



This article details the ongoing research into a drug referred to as MK-8591. The article is very brief & full of jargon.  Google MK-8591 for more info.    Investigation into the compound has been ongoing for years.  It is being hailed as s potential  long lasting, monotherapy HIV fighting med.  

This would mean a single drug to treat HIV that could last from a week & potentially up to a year.  An annual pill or injection.  That would resolve so many problems with access  & adherence.  Even at just weekly. this would be extremely liberating for those people who take several pills daily.  

I realize this isn't a cure. But maybe, making the illness easier to live with is the next, right step to take.  If this pill can aid in increasing adherence & access then they will help in fighting the spread of HIV & AIDS.

Hopefully, this will be available soon.  We'll see,

Cya...

Monday, March 28, 2016

Cold Monday....



We dropped down to freezing last night.  I hope that's the last time of the season.  I'm ready for some warmer weather, not hot, but warmer.  All this up & down weather, alongside the high allergen levels has been really rough on my roomie, the cats & myself.  We're supposed to hit 70 F today, I doubt that will happen.  

We went shopping this morning.  I did fairly well on the Cheap Chocolate Day Hunt.  I didn't grab all I could, but I did well.   Most the stuff is just reformatted normal candy anyway.  I can get a Reese's anytime, so I went for the more seasonal stuff.

The month is wrapping up.  There are forecasts for the beginning of April to be cooler than normal.  I'm ready for Spring stay in gear.

Cya...

Sunday, March 27, 2016

Happy Easter...



Another Easter is here.   You wouldn't know it from the weather though.  It's supposed to be freezing again tonight.  Then start going back up a little.  

I don't have much to write about today.  We've got our holiday meal mostly put together.  Then we'll eat & whatever.  

I found an article on stigma,  It's a good read.  It's about, what is HIV stigma.

Cya...

Saturday, March 26, 2016

Cooking...



I'm getting some cooking done this morning.  Stuff for today & tomorrow.  I won't have to cook much on Easter.  Not that I care much for this holiday, but it does pay out later in cheap chocolate.  I have to go out later & pick up some stuff I forgot.  Not much going on today, so I'll post more tomorrow.

Cya...

Friday, March 25, 2016

Way Chillier...



It's pretty chilly right now.  It dropped down to freezing again last night.  It wasn't supposed to get that cold, but it did.  

There've been more articles reporting about calls for people to get tested for HIV & hepatitis after visiting a hospital.  This time it was in Virginia.    The articles didn't say what happened, but it's still possible more people got exposed while at a medical center.

It's Easter weekend, so a good weekend to those of you who celebrate the holiday.  To everyone else, good hunting on the day after for cheap chocolate & other candies.  Stay warm.

Cya...

Thursday, March 24, 2016

Just A Thursday...



The trash is gone & the errands have been ran.  We don't have anything to do today.  The laundry's folded & put away.  Most of the little stuff is as done as it can be for the moment.

The assistance renewal applications were turned into the DHS office.   Yesterday's errands went as well as possible.  My roomie has already heard back on her renewal app & it's handled.

The wind blew hard all day yesterday.  We had thunderstorms last night with some hard rain, nearly an inch.    That definitely puts us over the monthly rain total average.

It's chilly again, but that's March for you.  Easter is coming up & so is another Cheap-Day-After-Chocolate-Day.  Guess, which 1 we're  more excited about.

Cya...

Wednesday, March 23, 2016

Busy, Windy Morning...



This will be brief.  We've got a lot to get through today.   We have to drop off our renewal materials & head to Fort Smith.  For the past few days, the allergens have been in the very high zone.  Add to that, we've had average wind speeds of 20+ & gusts of over 35 all day yesterday & it looks to be the same today.   The wind's blowing up all types of debris.  More tomorrow.

Cya...

Tuesday, March 22, 2016

The Process Begings...



The renewal process for my benefits assistance began.  I finished the online application, but as usual, something screwed up with their site.   The application processed, but I can't print it out.  This has happened  before & I usually just cut & paste the application into my gmail.  Then I can print it.  

Not this year.  This form refuses to be saved in any format.  I managed to cut & paste it into an email, but I can't get anything to print it.  The programs either refuse to read it or freeze when they try to print it.  I don't know what's up with it.  I ran my malware & AV programs, nothing there.  This is just glitchy.  Hopefully, I won't need a printed copy.  An online version was forwarded on when I completed the application.  I hate renewal time.

Cya...

Monday, March 21, 2016

Renewal...



We got our notices of renewal for benefits.  I hate this process.  It's tedious & trying.  We're ahead of the game & have the things they'll need.  We've gotten used to that part.  But there's still the online part, which never fully cooperates. Then there's the waiting.  I didn't know how I fared last year right up until the point I went to the bank.   This is just very unnerving.   So, from here until May, I'm going to be a nervous.

Cya...

Sunday, March 20, 2016

Spring...



Spring may have sprung, but this was the coldest morning we've had in a while.  Tomorrow is to be a bit colder.  I'm tired of it not being cold enough to kill bugs & grass, but not warm enough not to need the heater.  Weather, pick a program & get with it.

I heard from my doctor's office Friday.  My thyroid test came back & the results weren't what my doctor thought they should be.  He's adjusting my thyroid med.  I was on the smallest does possible, he's bumped it to the next dosage available. 

Not much planned for us today.  Just trying to stay warm & figure out what we've got going this week.  I'll post more tomorrow.

Cya...

Saturday, March 19, 2016

Freeze...



March weather is in full  force.  We've left the pleasant warmness that has the grass growing like wild & sending allergen armies into the air.  We're have freeze warnings for the next few days & have a few more days in the 30's F past that.  

After the little bit of rain we had earlier this week, the humidity is high.  This wet, cold & dreary stuff is awful.  We had to turn the heater back on for a bit last night & this morning.  It'd been over a week, almost 2, since we had to use it.  

I'm glad I hadn't washed & put away all my cold weather blankets & things.  I'm using them today.  I'm trying to keep my toes from turning too blue.    I'm not sure I'm winning that battle.   It shouldn't be this cold & have to plan on mowing at the same time.  Still, it's not quite Spring yet, so this isn't unexpected, just unwanted.

Cya...

Friday, March 18, 2016

Chilly & Drear...



It's raining here & it's been dreary all morning.  I'm having a hard enough time adapting to this daylight saving time crap, without everything being so dismal.  

Nothing much going on here today.   We went shopping & that went alright.  We'll be having a belated St. Pat's dinner this weekend.  It was just easier than dealing with on Thursday,   

My hands are chilly & tired of typing already.  I'll post more tomorrow.  Hope you have nicer weather wherever you're at.

Cya...

Thursday, March 17, 2016

It Continues...



 A short while back I wrote about a man in Colorado that had exposed numerous people in the hospital he worked to HIV & possibly hepatitis.   This man is/was a surgical tech & some articles have made it sound like he may have been a pharmacist.  It's unclear on that.  The Colorado hospital was only 1 or 4 places he could've exposed people by tampering with their meds to feed his  addiction.  

This article details the matter better.  They're estimating up to 5,000 people need to be tested.  If only 1% of those are infected, that's 50 people.  This man could've contaminated thousands just for his habit.  

There's no undoing this damage.  Even if none of those possibly exposed  turn out to be + or have hepatitis, the damage is still immense.   The PR trust issues will haunt these hospitals possibly for decades.  Some people already have a distrust of medical institutions, this will only further that doubt.   It could possibly interfere with future medical treatment they may need.

This man did all this for an addiction.  These actions were monstrous,   He can never be trusted not to endanger other's lives & well beings again.  

Cya...

Wednesday, March 16, 2016

Plumbing Hate...



Alright, no real post today.  It's only a little past 9 AM & I'm already spent.  My damn toilet went & decided to go on a running, leaky trip.  I had to handle Walmart  & replacing a fill valve this morning & I've had it.  I'm also apparently at war with the letter "L".  Every single "L" I've tried to type has been in the wrong place somehow.   Hopefully, my toilet fix holds.  I'll post more tomorrow.

Cya...

Tuesday, March 15, 2016

Stupidity & Stigma...



This may be 2016, but according to this article, stigma & stupidity concerning HIV are raging across Asia.  So nice to know stigma is alive & doing so abundantly well.  In many of these Asian countries, the actions towards people living with HIV are heinous, inhuman & should be criminal.    

Many doctors, social workers & other medical care workers are refusing to treat these people.  Hard to call them patients if they aren't even being admitted to the hospitals.   These victims of stubbornly, willing stupidity are being refused medical treatment from surgeries to basic care, even as far as not being allowed beds in the facilities.  I guess an HIV+ person might infect the beds.  Idiocy!

Unfortunately, most of these + people will probably die. Most of those ignorant bastards calling themselves medical professionals will continue to pronounce the rightness of their actions.   All the while, HIV will continue to march through Asia.  

A person can only hope some of these people pull their heads out, but that seems unlikely.    My best wishes go out those suffering.  I have nothing but contempt & ill will for those refusing to aid to these people.  Maybe someday they'll be on the other side of the matter & see what it's like to be denied the most basic human decency.

Cya...

Monday, March 14, 2016

Politics...



I'm really sick of political talk. Too bad, we've still got months before the election.  The republicans are giving their typical idiocy when it comes to the matter of HIV, if they can be bothers to talk on the subject at all.  Hillary Clinton went & made a huge blunder regarding Nancy Reagan,   Now, we have Bernie Sanders announcing his plan to handle HIV.    

It doesn't really matter what these candidates say.  Even if they really mean, they'll still have to push it through congress.  By the time any of these approaches gets handled, if at all, they won't be anything like what the candidates are pronouncing now.

Presidential promises are mostly just BS.  Those people will say what they think will get them elected.  Even if they mean it, they don't have the power to really make it happen.   Stop listening to promises & look at their actions.  Lip service is worthless.

Cya...

Sunday, March 13, 2016

I Hate DST...



I utterly despise Daylight Saving Time.  Once again,  it's kicked my ass the following morning.  I feel like crap.   My sleep schedule will be off for days.  My body aches & my roomie's fairing no better.   This ridiculous temporal sleight of hand needs to go away forever.  We gain nothing from this & there are too many to list reasons why it sucks.   I doubt this was ever really a good thing, but at this point in time, it no longer serves any purpose.  Unless, that purpose is to really annoy people & cause them agita.

Cya...

Saturday, March 12, 2016

Daylight Saving Time...




It's back already.  Waking up tomorrow will be a pain.   It'll be an hour earlier,  as well as being dark & dreary from the weather.  I hate daylight saving time.  I'll have to change the clocks & prepare myself for losing an hour.   It'll take me days to acclimate to this time shift.    I fail to see any reasonable good coming from this temporal fake-out.

Cya...

Friday, March 11, 2016

Still, It Goes On...



I was reading through articles today & it was a lot of the same old stuff.   That seemed to be the point.  It was the same old news.  I noticed from reports of 72% of sex trade Johannesburg being + to the 219% jump in HIV rates in Boulder County, Colorado.  It was really the same story.  HIV is still here & we're not doing nearly enough about it.  

The virus is spreading & disproportionately affecting those people living on the fringes.  The extreme poor, isolated, under educated, culturally limited & ethnic are the most apt to contract HIV.   The same old news.

Throughout the world this plays out as co-infections with illnesses like hepatitis are on the rise.  The emergence of new illnesses like Zika.   We can't get a grip on a virus we've known about since the 1980's, so how are we going to handle co-infections, resistant HIV & Zika?

Cya...

Thursday, March 10, 2016

Still Wet...



For the 3rd day, it's raining.  I'm not too fond of this wet overkill.  It's making waking up in the morning a pain.  The rains could last until Monday.  Yippie! Not.   The chill is seeping in & making  my feet cold.  I thought we had passed the time of house shoes.  Apparently not.

I don't have anything to post about today other than the rain & my issues with it.  I'll wrap up for now.  Try to stay dry or at least comfortable. 

Cya..

Wednesday, March 9, 2016

The Rain's Back...



Well, it's been pouring.  We had somewhere up to 3" of rain yesterday & almost an inch already today.   I'm sure Weather Channel will say it barely rained at all.  I don't know what's up with that site's rain totals.  

The downside,  is the rain has made it dreary, damp & chilly.   The grass will also need mowing sooner.  The upside, less fire hazards & my breathing is already better.  Hopefully, we won't get too much mold & mildew from this downpour.  

Besides taking out trash, there isn't much going on here today.  I'm glad, the rain's have probably already made some roads questionable.   We need the rain, but I wish we could get it in small showers & not days on end downpours.

Cya...

Tuesday, March 8, 2016

Early Morning...




I've got to go get blood drawn in a bit. I'm up earlier than usual & not happy about it.  The drear has returned, but we're supposed to have rain most of the week.  Looks like the grey skies are here for a while.  It may be warmer, but the gloom & dampness is leaving a chill in the air.   I can handle rain much better than the suggestion of it.

This lab work is for my thyroid levels.  I guess we'll soon see how well the new med is working. If it isn't, the doctor will alter it.   Well, I've got to go, Until tomorrow.

Cya...

Monday, March 7, 2016

Busy Morning...



We had to go shopping this morning & my roomie has an appointment later.  The weather has been extremely windy & it's blowing debris everywhere.  My allergies were already hating the pollen levels, but this wind is making it so much worse.  It looks like we're in for some rain this week.  Maybe it'll wash away some more of the allergens.

I'll be busy tomorrow morning as well.  I have to get around early.  I need to have blood work done for my thyroid levels. Hopefully, I'll get back to normal posting after that.

Cya...

Sunday, March 6, 2016

Focus...



 A few days ago, I did a post over my issues with reading since becoming +.  This is something I would've loved  to have had a support group to talk to about.  Was what I experienced something due to HIV, my shoddy health, stress, all the above or something else entirely?  I really had no source of personal issue information.  There are no support groups near me & those online were just strange, awkward & sometimes somewhat adversarial.  

I know there are cognition issues for some people with HIV.  Was that what I was experiencing?  Was I just stressed & tired?  I was frustrated with the inability to read as well as I did.  I could've never have gotten through college if I'd been this ill then.  

Whatever it may have been, as with most things concerning HIV, I've only had my roomie, the internet & myself to get through it.  There are some areas where doctors have just been useless.    I still don't have the answers, but I'm trying.  I've made it through a novel & have started another.  Maybe I can get back into this eventually.

The medical info is incredibly important regarding HIV, but so are any pointers on the day to day living with the virus.    Most the advice I've found has been so touchy-feely or new-agey it's not been helpful for me.   All I can do on this matter, is pick up a book.  I can try to read it & not let myself get too frustrated.  If I do get anxious, I can put it back down & come back later.  Like later that day, not next year.  It seems to be working for the moment.  It's another step.  

Cya...

Saturday, March 5, 2016

Back To The Yard...



My allergies will be hating me even more in a little bit.  It's time for our annual Spring yard cleanup.  It doesn't take much, but there are some hanging on flowers that need trimmed back & several Winterberry bushes that need pruned.  We let them grow the rest of the year so they can flower & have berries ready for the following Winter.  If you don't prune them, they can get huge.  

That's our afternoon.  I've got some other things to tend to & then some cooking.  That'll wrap me up for today.

Cya...

Friday, March 4, 2016

1st Friday In March...



Afraid this is going to be another short post.  I'm not in a hurry, but I just haven't found much to write about today.  Good articles were  in short supply & mostly on subjects I've covered.    I've got to pick my roomie up later & maybe get something to eat.  Those are my big plans for today.

We've got some yard work to get through this weekend.  Not much, but some trimming that needs to get done before the yard guy shows up to mow again.  I hate we're already talking about mowing.

I've started another book, Black Crusade.  It's an unpublished novel from the RPG game line, Ravenloft.    The company bought the novel & then cancelled the line before publishing it.  They later released it on their website.  I've read all the other books in this line, so I'll try this 1.  That doesn't mean much, considering all the novels were written by different authors.  Hopefully, it'll be a good read.

Have a great weekend.

Cya...

Thursday, March 3, 2016

Busy Beginning...



A brief post today.  We've had a busy morning with getting bills paid, groceries bought & other errands ran.   We finally got back later than usual.  Everything was in slow-mo this morning.  Nothing went as quickly as it should have.   I've got other things to get to, so I'll limit this post & get back to it tomorrow.

Cya...

Wednesday, March 2, 2016

Unfocused Distraction ...



A big difference between my pre & post HIV self is focus.   Before HIV, I was an avid reader.  I went through books at a fairly serious rate.  That changed with HIV.  I'm not sure how many others get this but I did.  At 1st, I was just too exhausted to focus on anything besides not falling out off the couch.  But even after being on my meds for years, I could hardly read anything longer long a comic.  My mind would just skip away from  it & give me a dull ache. 

I hated this.  Reading & music were my childhood saviors & throughout most of my life.  Now, sometimes even listening to music can be too much.  Too much buzzing, too much nostalgia, too much emotion, loss or something.  I'm finally getting past that with music these last couple of years.  But, it still gets to me sometimes.

Several months back I read a list of the best fiction of 2015.  I scanned the article & found some that seemed interesting.   I've tried to go back to some of my old, standby authors of the past, but they  held no interest for me now.  That really sucked to let go of them.  Maybe someday I'll get back to them.  

I got e-book copies of these highly reviewed new works.  But, I didn't read them.  They waited for months, before I looked seriously at any of them.  Finally, I did. It was getting promoted everywhere.  It had serious hype.  It was even headed to television.  What I saw on TV was fair enough.  In my past experience, books had always outshone film versions.  I decided to read this book, actually by this time it was a series.

It was praised, produced & pushed.  Most of all it was fairly short.  I had no previous attachments to the author.  I went in hopeful.  I was actually going to read again & I did.

I managed to push myself through the 400+ page book in about a week.  That wouldn't of lasted a couple of days in my reading prime & possibly as little as a few hours if  the piece was really good.   I plodded through the work. I made it to the end & now I'm just sort of pissed.

After forcing myself to read something, specifically this praised piece, it seriously just sucked.  I won't go into the author or work's name.  I'm not  here to trash art or fiction.  I can't blame the writer for me  not liking his work.   I can harp on his bad writing & refusal to use proper punctuation.   I can blame his editor for not screaming about his lack of commas.  I can blame the market people for calling this work adult when it definitely belonged in young adult with all the other mopey, dopey, some teenager saves the world crap.   I guess the alcohol & sex moved the young characters across the aisle into the adult land.

I blame myself for buying his praise & when I looked closer only about half the people really loved his work.  Most of the others really hated it.    This isn't on him, it's on me.  I contracted HIV & lost my passion for reading.  I fell out of trend & knowledge of the current writing scene.   I'm done with lists of the best what-evers.   I read 1 over the best horror films of 2015 from a an online blog, I09, Gawker or some such thing.  I know, consider the source.   Between my roomie & me, we've seen them.  They were OK at best & most of them were outright awful.  Screw the best lists.

But, I did it.  I read my 1st full book  in over a decade.  I dipped my toe back into fiction.  Too bad the water I choose was a murky, childish sty.  Still, even though the book was awful, I won. I met my goal.  Maybe that's my goal for 2016.  Maybe, I can try to get back into reading, even if it does still sort of give me a headache & it's still hard to focus.  I'll put this in the win column.

Cya...

PS:  ...ygolirT snaicigaM s'namssorG veL diovA

Tuesday, March 1, 2016

March On...




It's March again.  We have 12 days until idiotic Daylight Saving Time kicks back in for the year.  Yippie! Not!   Then there's 19 days until the Spring Equinox.    26 Days until Easter & 27 days until another cheap chocolate holiday.  I have a lab appointment in a week.  So far, that's all that's on the books out of normal for us.

OK, March, you started with almost 1.5" of rain.  We need a few more inches, but no rough stuff.  You can stay cool or you can warm up, but please not both.  So here we go, March is here & Spring is arriving.  

Cya...